When I was first admitted to the hospital here in NY, I was terrified to be away from home. I was just sure I would be alone. My best friend had just gotten a job ten minutes from my home in DC and I knew if I stayed in the hospital there I could at least […]

I will admit I was not excited to spend my 22nd birthday in the hospital. I thought Taylor Swift would be singing in the background while I ate breakfast at midnight and dressed up like a hipster in non-prescription glasses. But no. At midnight I was peeing out the last of my diuretic and falling […]

So on top of this heart failure thing, I think I also might have tooth decay. From the copious amounts of candy my boyfriend bought me to the donuts my mom keeps buying me, it’s only a matter of time before my teeth fall out —or I at least get my first cavity. The icing on […]

Give me back the smiley fries and baby food, please. Let’s face it: despite the fact I have the heart function of a 60 year old druggie/drunk, I am still a kid at heart. Sure, I stand about two to four feet taller than the average patient here and I am the only one who can […]

At first the animal shaped chicken nuggets and smiley faced fries were cute. My nurse realized that I am indeed an adult so she put in a request for adult lunches for me. When my lunch tray was brought to me today, to my surprise I actually had regularly oblong shaped chicken nuggets and wavy fries. Then […]

Today has been a long day at Montefiore. I must tell you I am a hot commodity in the ICU. This is because today I had a Swan-Ganz inserted, which is a rarity in the Pediatric ICU. A Swan-Ganz (or Swan for short) is a catheter that monitors the pressures in my heart and serves […]

I may not be in my own bed, but I am in a bed and comfortable. It has been a long day starting with a long drive from DC to New York, where I am admitted at Montefiore Children’s Hospital. This all started last Friday, when I wasn’t feeling well. I didn’t want to Skype […]