Still taking selfies from the hospital #IWokeUpLikeThis

I may not be in my own bed, but I am in a bed and comfortable. It has been a long day starting with a long drive from DC to New York, where I am admitted at Montefiore Children’s Hospital. This all started last Friday, when I wasn’t feeling well. I didn’t want to Skype and watch Netflix with my boyfriend which was the telltale sign, that something was off. Friday night/ Saturday morning I was admitted into Children’s National Hospital, which also happened to be my dad’s birthday—sorry dad… He seemed content as he sported a felt crown, beads, and a leopard snuggie. He kept calling himself the lion king, even though he was wearing leopard. I don’t even try to understand that man and shame on my mother for encouraging him.

My father making the most of his birthday.

After a series of tests and a new medication I was discharged Tuesday, knowing that I would have to readmit myself to ICU only this time it would be in New York. I keep getting messages and texts from people asking me to keep them posted, so voila. Here is what I am up to!

It really isn’t that bad. Apart from the fact that my bathroom is a toilet that swings out from under a sink in the corner and my privacy lies in the hands of a thin curtain around said “toilet” in a hospital room made of glass. I really find it fairly humorous, that is until I actually will have to pee. I’ve just been holding it.

My 1st Class Restroom

The view!

I had been connected to a Milrinone pump, which is an IV medication that relaxes my valves and makes it easier for my heart to do its work. My at home pump is disconnected and they now how the Milrinone pumping through their equipment into my PICC line. I’ve included some links for the medically curious. Wikipedia and WebMd are semi-reliable right?

My doctor says I will be listed at 1A which is the highest priority and I am the only person in this hospital that high on the list. So, hopefully, I should get a heart soon, but the wait is unknown. I expect to be here a while, a few weeks or so. I am ready for it and I have no choice but to get comfortable. My nurse has already seen all of me. I mean, there isn’t anything I have that she doesn’t have more of so I am not really embarrassed, but it helped to realize I have no choice but to get comfortable. Overall, I am feeling good and have gotten many touching messages from friends and family and I just wanted to say thank you and let you know it warms my too big heart overflowing with all the love I have for you all.

I shall keep you all posted.

XX